Marfan Syndrome

As you can see our page is a little light on resources.  If you have any suggestions please feel free to leave them in the comment section or email us at

Thanks in advance for your assistance.

















  • By Rachel, February 23, 2015 @ 8:18 pm

    Hi Tina, thanks for your invitation to join your Wednesday link-ups. I just saw that you had a page for Marfan Syndrome and I thought I would point you in the direction of Jess. She is an extraordinary writer (like, take your breath away writer) and blogs about her life with Marfan, here:
    Thought you’d like to take a look.
    Tell her Rach from the Chronic-ills of Rach sent you 🙂

  • By TinaMiller, February 25, 2015 @ 10:04 pm

    Thank you Rachel. I will try to contact her but please share this with her as well as any other bloggers you feel would help others or might benefit from the link-ups. The more the merrier and thank you for responding. The new link up is ready if you would like to share up to 3 posts (old and new). We would love to hear from you.

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