Posts tagged: EDS Warrior

How people look at you if you are using a wheelchair without being paralyzed.

How people look at you if you are using a wheelchair without being paralyzed.

A personal story by Karina Sturm

With a chronic condition like Ehlers-Danlos Syndrome I am used to aids like bandages for all my joints and neck braces but usually I try to hide them as much as I can.  I do not want to look sick.

But there are situations when you need to accept extra help, like at the airport after a 10 hour flight.

All my joints hurt and I had the worst brain fog ever.  I had to book airport assistance and a wheelchair and I needed help with my luggage.

Last year it was the first time I had to use the wheelchair and I had no idea what this would mean to me.  I am a very stubborn and proud person and had a hard time to accept that I am chronically ill with a huge possibility of getting worse.

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