To view the beginning of this Spoonie story click here.
20 years of failed allergy injections are also now behind me; new allergies were diagnosed, but I was able to stop my injections.
I actually feel better OFF the injections than I did when I had them.
Go figure! Despite increased medical costs in this state, moving to Florida was the best decision I have ever made.
As far as my diagnoses go, I have quite a few.
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Tags: cardiologist, Chronic Illness, CLassical Type, Dysautonomia, echocardiogram, EDS, Ehlers Danlos Syndrome, Fibromyalgia, Hypermobility, Marfans Syndrome, Nerve pain, Postural Orthastic Tachycardia Syndrome, POTS, Scoliosis, Spoonie
Real Life Stories | TinaMiller | May 22, 2016 4:26 pm | Comments (1)
Karen’s Inspiring Story
Living With Marfan’s
Part 1
My name is Karen and I have Marfan Syndrome.
I accept my disease and am actually grateful for it. Having Marfan’s has helped make me who I am today………and if I must say so myself, I think I’m a pretty cool person.
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Tags: Aorta, cardiologist, Cataracts, Contacts, Eye Issues, Family Genetics, Marfan Syndrome, Real Life Story, spontaneous mutation, St. Jude Valve
Real Life Stories | TinaMiller | March 3, 2015 8:00 am | Comments (1)