Posts tagged: Dysautonomia

A 26 Year Old Spoonie Shares Her Story (Part 2)

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A 26 Yr Old Spoonie Shares Her Story Part 2

To view the beginning of this Spoonie story click here.

20 years of failed allergy injections are also now behind me; new allergies were diagnosed, but I was able to stop my injections.

I actually feel better OFF the injections than I did when I had them.

Go figure! Despite increased medical costs in this state, moving to Florida was the best decision I have ever made.

As far as my diagnoses go, I have quite a few.

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40 Years to Zebra

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In honor of EDS awareness month, I wanted to share my EDS story.

40 Years to Zebra Cindy B's Story of Diagnosis

40 Years to Zebra

It actually starts years, well decades, before I even knew I had EDS or what that word even was.

I have been sick since birth.

I was able to find records that show my hips popping out at 6 months and all sorts of notes about checking left arm, right leg, etc.

Around that time I also started having other issues but no one connected that to my hips.

When I was 5, I had my first surgery for a hernia that I either gave myself or it just came up?

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