Posts tagged: Marfans Syndrome

A 26 Year Old Spoonie Shares Her Story (Part 2)

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A 26 Yr Old Spoonie Shares Her Story Part 2

To view the beginning of this Spoonie story click here.

20 years of failed allergy injections are also now behind me; new allergies were diagnosed, but I was able to stop my injections.

I actually feel better OFF the injections than I did when I had them.

Go figure! Despite increased medical costs in this state, moving to Florida was the best decision I have ever made.

As far as my diagnoses go, I have quite a few.

Continue Reading the full Article…



Real Life Story – Marfans Journey #2

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My name is James Beal.  I was born in north Carolina in 1980.  I lived a normal childhood with little fear.

At night when I would go to bed I would always have the same strange dream.  I would dream I was sitting on the stairs looking out the window.  The Easter bunny would run by the window like someone was chasing him.  Then the devil would run by.  A few minutes later the devil would peek in the window,  hold up the rabbit ear and point at me.  At that moment I would wake up with severe chest pain unable to speak.  The doctors always said it was a heart murmur.

At 15 I was falling asleep in class, having severe chest pains, and unable to focus on anything.  I went to the Dr., but was told it was growing pains.  While running track one day, I had a heart attack and hit the ground.Continue Reading the full Article…



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