Posts tagged: Awareness

Winning the Race, Despite EDS, James’ Story of Success

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Winning The Race Despite EDS James'Story Of Success

When my son, James, was five and just started kindergarten, he was quiet and didn’t talk unless spoken to.  He was a great student, followed directions, didn’t misbehave, and I was always told he was the epitome of the imaginary “perfect student.”   Eight weeks into the school year he fell from the monkey bars breaking his arm into 9 pieces.  He never cried.  He went and sat by the classroom door and waited for recess to be over.  For the next three hours the teacher knew something was wrong but James would only respond “I’m fine.”   When they had him take his sweatshirt off because it was getting warm they realized his arm looked like a snake.

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Laura’s Journey With E.D.S.

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My name is Laura, and I’m 32 years old.  I’ve had chronic pain since I was 14. I’m an artist, and I love to make stuff… but sometimes I struggle because of my hands.  This is my story.

Laura's Journey With EDS Photo

I have I a connective tissue disorder called Ehlers Danlos Syndrome.

It affects how my body produces collagen, which is basically the glue that holds our body together.

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40 Years to Zebra

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In honor of EDS awareness month, I wanted to share my EDS story.

40 Years to Zebra Cindy B's Story of Diagnosis

40 Years to Zebra

It actually starts years, well decades, before I even knew I had EDS or what that word even was.

I have been sick since birth.

I was able to find records that show my hips popping out at 6 months and all sorts of notes about checking left arm, right leg, etc.

Around that time I also started having other issues but no one connected that to my hips.

When I was 5, I had my first surgery for a hernia that I either gave myself or it just came up?

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33+ Ways To Spread E.D.S. Awareness

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33 Ways to Spread Awareness

33+Ways to Spread E.D.S. Awareness

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Get The Word Out Wednesday # 13- 2015

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Get the Word Out Wednesday

Happy Tax Day from the Zippy!

You will notice that the “Get The Word Out Wednesday” Link up was not available last week.   Life with three zebras has been a little hectic again and I made the executive decision to focus on my family and not on the blog.  I enjoy blogging and reaching out but sometimes my own health and well as my children’s has to come first……BUT we are back this week and ready to share your stories, articles and information.

Let the sharing begin!!!

“Get the Word Out Wednesday” Link-up will be available EVERY Wednesday for blogs featuring articles that will help those with a chronic illness.

This linkup is not only for zebras but ANYONE with a chronic illness that has a personal story, help (allergen-free recipes, ideas), adaptation ideas, testimonial or anything that would be helpful or encouraging to others, (even sharing a day in your life).

The idea of the “Get The Word Out” link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, etc… and support each other during this sometimes lonely journey.

Bloggers struggling with pain and challenges can visit other sites, while non-bloggers can find others like them and follow along while offering encouragement to one another.

I LOVE fun crafty, save money, anything goes linkups but the “Get The Word Out” Link-up is not one of those. We will have a few rules to keep the links useful and uplifting to our readers

RULES FOR LINKING UP

1.) Blog Links must be family friendly and link to a post. Not a home page. You may link up to 3 posts in one link-up party.

2.) The links used can offer personal stories of your life with a chronic illness, pain, handicap, physical challenge or invisible illness. Income earning ideas for those with physical challenges (not promoting your downline specifically-it must be an actual post sharing what it is how and it helped you.) Tools (splints, braces, grabbers, kitchen tools, etc… that have helped you in some way to “adapt” to your challenge (illness), recipes adapted to deal with an allergy, articles on helping a child with physical or mental challenges (diet, behavior, sensory, ADD, ADHD, etc…), articles on awareness, information, compiled useful lists, etc…

3.) If you are a reader and do not have a blog but would like to offer an article you feel would be helpful. Just leave the name or a link in the comments and our readers can look it up and I will contact them about joining our weekly link-up. (Hopefully as word spreads we were have an abundance of articles to offer.)

New To Link-ups?

Bloggers here’s how:

1.) At the bottom of this post you will find a blue button that says “Add Your Link”. Click on it.

2.) Follow the instructions on the next page. Please remember to link to a specific post and not your main page. (We encourage readers to explore your page but do not want them to get frustrated and quit looking if they cannot find the article they originally wished to link to.)

3.) Stop by a few of the other blogs and leave a note of encouragement on the articles you enjoyed. Feel free to mention that you were sent there through this linkup. (To encourage them to link-up again.)

4.) Please link back to The Zippy Zebra. I do not have a special button yet but feel free to use the icon at the top with an embedded link OR a simple text link will do. (If you dont know how please message me and we can walk through it.)

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