Posts tagged: Invisible Illness

Get the Word Out Wednesday #6-2015

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Get the Word Out Wednesday

Thank you for stopping by and please be sure to tell everyone you know (bloggers and readers) about the opportunity to spread the word.

It is has been another fun filled week here at The Zippy Zebra Household.  I have been reaching out to more chronic illness communities in hopes to “Get the Word Out” asking them to share their “Real Life Stories” for our Tuesday and Thursday series.  If you are interested in sharing your story please do so by emailing it to thezippyzebra@outlook.com or click here for more details on what we are looking for.

I have been speaking to some great women in the EDS community including a paranormal author Rebecca Howard-Patrick whose current series contains a protagonist with EDS. Her first book is available on Amazon at a discount right now Windwood FarmMysti Guymon-Reutlinger author of Journey to Health: A Holistic Approach to Ehlers Danlos Syndrome.  And a model, still working despite her EDS complications.  All have agreed to share their stories in our “Real Life Story” series and I can’t wait to begin sharing.  I am not certain when these will be posted due to time constraints and deadlines everyone has but I have been promised they will share.  I want to be honest and share in advance I have not had to opportunity to read either of the books above as I just discovered them recently BUT I have ordered both and can’t wait to begin the next time I have a little room to breathe.

If you or someone you know is an author, blogger, video person or has a story to share please send them our email and ask them to share with us. thezippyzebra@outlook.com

I also began a “Closed” facebook group for encouraging those of us who find it difficult to do the everyday things in life (dishes, getting out of bed, laundry, dinner), etc… Check the details out at  “Celebrating Each Day, Each Project, Each Accomplishment at a time.”   You can request to join here.   It is to offer encouragement to each other as we make plans for the day and try to complete them.

We will be hosting a “Get the Word Out Wednesday” Link-up EVERY  Wednesday for blogs featuring articles that will help those with a chronic illness.Continue Reading the full Article…



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Real Life Story – Marfans Journey #2

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My name is James Beal.  I was born in north Carolina in 1980.  I lived a normal childhood with little fear.

At night when I would go to bed I would always have the same strange dream.  I would dream I was sitting on the stairs looking out the window.  The Easter bunny would run by the window like someone was chasing him.  Then the devil would run by.  A few minutes later the devil would peek in the window,  hold up the rabbit ear and point at me.  At that moment I would wake up with severe chest pain unable to speak.  The doctors always said it was a heart murmur.

At 15 I was falling asleep in class, having severe chest pains, and unable to focus on anything.  I went to the Dr., but was told it was growing pains.  While running track one day, I had a heart attack and hit the ground.Continue Reading the full Article…



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Get The Word Out Wednesday-Week 2-2014

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Welcome to our second Get The Word Out Wednesday Link-up.

Get the Word Out Wednesday

Thank you to all those who linked up last week.

If you missed that post feel free to check it out here.

We will be hosting a “Get the Word Out Wednesday” Link-up EVERY  Wednesday for blogs featuring articles that will help those with chronic illness.

This linkup is not only for zebras but ANYONE with a chronic illness that has a personal story, help (allergen-free recipes, ideas), adaptation ideas, testimonial or anything that would be helpful or encouraging to others, (even sharing a day in your life).

The idea of the “Get The Word Out”   link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, etc… and support each other during this sometimes lonely journey. Continue Reading the full Article…



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Get The Word Out Wednesday-Week 1

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Welcome to our first Get The Word Out Wednesday Link-up.

Get the Word Out Wednesday

We will be hosting a “Get the Word Out Wednesday” Link-up EVERY  Wednesday for blogs featuring articles that will help those with chronic illness.

This linkup is not only for zebras but ANYONE with a chronic illness that has a personal story, help (allergen-free recipes, ideas), adaptation ideas, testimoniasl or anything that would be helpful or encouraging to others, (even sharing a day in your life).

The idea of the “Get The Word Out”   link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, etc… and support each other during this sometimes lonely journey.

Continue Reading the full Article…



One Teenager’s Response to Living With an Invisible Illness

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One Teenager's Response to Living WIth an Invisible Illness

One Teenager’s Response to Living With A Chronic Illness

My teenage daughter was asked to write a narration with a moral for her comp class this year.  She is a senior.  She chose to write not only about her fight to help others understand what EDS is and how it affects her everyday life but how she is not going to let her illness ruin it.

(She is definitely her momma’s girl.)

  This is her paper in it’s entirety with links added to empower others with useful knowledge.

Do Not Be Ignorant

Becca Dance photo

Once upon a time, in a not so far away land, lived a dark haired maiden.  She was your average, all around, American girl, but behind all of that was a different person that no one ever saw besides her family.  Until one day, she could not hide anymore.  She had to show herself to the world, not knowing how people would react to seeing her in the not so beautiful reality.  This is my story asking people not to judge me until they come to know me and my life.Continue Reading the full Article…



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