“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.
This linkup is not only for the chronically ill but for everyone that has a personal story, that offers help (allergen-free recipes and ideas), adaptation ideas, testimonials or anything that would be helpful or encouraging to others, (even sharing a day in your life).
The idea of the “Get The Word Out” link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, recipes, income earning ideas, etc… and to support each other during this sometimes, lonely journey.
Bloggers struggling with pain and challenges can visit other sites, while non-bloggers can find others like them and follow along in addition to finding recipes, tips and adaptations that may help.
I LOVE fun, crafty, anything goes linkups but the “Sharing Sunday” Link-up is not one of those.
We will have a few guidelines to keep the links useful and uplifting to our readers.
Bloggers before linking up please follow our guidelines found here.
[inlinkz_linkup id=636618 mode=1]
“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.
This linkup is not only for the chronically ill but for everyone that has a personal story, that offers help (allergen-free recipes and ideas), adaptation ideas, testimonials or anything that would be helpful or encouraging to others, (even sharing a day in your life).
Read more »
Dear E.R. Doc
Dear E.R. Doc,
Today I entrusted you to take care of one of my most precious possessions, my daughter, my baby, my little girl.
I did not make the decision to drive 3 hours to bring her to this E.R. lightly. I first took her to our family physician who then called her neurologist who recommended we come to the ER for a CT scan or MRI to check her brain. I even called while we were en route to be certain we were doing EXACTLY what her neurologist requested.
We didn’t come in at the drop of a hat. We didn’t co Read more »
“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.
Read more »
“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.
This linkup is not only for the chronically ill but for everyone that has a personal story, that offers help (allergen-free recipes and ideas), adaptation ideas, testimonials or anything that would be helpful or encouraging to others, (even sharing a day in your life).
The idea of the “Get The Word Out” link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, recipes, income earning ideas, etc… and to support each other during this sometimes, lonely journey.
Bloggers struggling with pain and challenges can visit other sites, while non-bloggers can find others like them and follow along in addition to finding recipes, tips and adaptations that may help.
I LOVE fun, crafty, anything goes linkups but the “Sharing Sunday” Link-up is not one of those.
We will have a few guidelines to keep the links useful and uplifting to our readers.
Bloggers before linking up please follow our guidelines found here.
[inlinkz_linkup id=636611 mode=1]
During the month of May we have been sharing E.D.S. Stories in our “Real Life Stories” Series. I am thrilled to say that we were able to share 13 personal stories with social media.
We would love to have you share YOUR story as well. Details on how and what we are looking for are found on our submissions page.
Our goal is to continue sharing at least one E.D.S. story a month to spread awareness and demonstate how it truly affects each and every one of us.
We are also wrapping up our online fundraiser on May 31st. 25-30% of all sales will be donated to fund EDS Research. You may click here to learn more.
“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.
Read more »
I just want to be well for my son. A Mother’s Story
I don’t even know what healthy is!
But my son needs a strong and healthy mom.
I’m a 27 year old disabled mom with a rare syndrome called Ehlers Danlos Syndrome type 3- Hypermobility. It’s a multi-systemic disorder, meaning it effects, in severe cases like mine, almost every single body system. It’s caused by a defect(s) in connective tissue. Collagen is mainly effected, which the body contains about 85% of!
I remember the pain started around the age of 7. It was nerve pain from carpal tunnel and tarsal tunnel syndrome which was the worst! I was told I was being a baby about it and that it was just growing pains (I am quite short, only 4″11.5″.”) It was joint pain daily as well, with some muscle pain.
I also had panic attacks from all the pain, it was so overwhelming, I couldn’t sleep and got gastrointestinal migraines.
Read more »
Tags: CCI, CFS, Chiari, Cranial Cervical Instability, Ehlers Danlos Syndrome, Gastroparesis, GERD, Helping Your Unusual Child, Hypermobility, Parenting with Chronic Illness, POTS
Real Life Stories | TinaMiller | 
May 26, 2016 11:46 am | 
Comments (0)
My primary doctor has referred me to a rheumatologist, who I will see in June, because my last blood test revealed a positive ANA panel. This means I likely have an autoimmune disorder, on top of everything else.
I am scared to go see this specialist, as my last rheumatologist I saw outright told me I was crazy (!), was too young to have so many problems, and that I was obviously making it all up, I was being dramatic, and it was all in my head.
It’s a tale too many chronically ill patients hear.
I’m not being dramatic; I’m being honest.
I wouldn’t be paying a medical professional to help me if I wasn’t at breaking point!
Read more »
To view the beginning of this Spoonie story click here.
20 years of failed allergy injections are also now behind me; new allergies were diagnosed, but I was able to stop my injections.
I actually feel better OFF the injections than I did when I had them.
Go figure! Despite increased medical costs in this state, moving to Florida was the best decision I have ever made.
As far as my diagnoses go, I have quite a few.
Read more »
Tags: cardiologist, Chronic Illness, CLassical Type, Dysautonomia, echocardiogram, EDS, Ehlers Danlos Syndrome, Fibromyalgia, Hypermobility, Marfans Syndrome, Nerve pain, Postural Orthastic Tachycardia Syndrome, POTS, Scoliosis, Spoonie
Real Life Stories | TinaMiller | May 22, 2016 4:26 pm | Comments (1)
Welcome to Sharing Sunday #18!
This has been a super busy month at The Zippy with the launch of E.D.S. Awareness month.
The T-shirts we created to spread awareness are ready, are affordable and can be shipped straight to you. NO waiting for a minimum.
You can find the link here.
We have also been sharing one E.D.S. Story a Day in our “Real Life Stories” Series.
Read more »
Subscribe
