Posts tagged: EDS Personal Story

The Early Years- “When EDS Was Still Fun”

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Picture for blogHi!  I am a married Zebra mom with two (diagnosed) Zebra teen girls and one teenage son.

Why do I refer to us as zebras?   You can find those details here.

The accessories at our house tend to come from a brace catalog, more than Glamour magazine, but the good news is… we match!  I am currently involved with two blogs, spreading EDS (Ehlers Danlos Syndrome) Awareness, making crafts, homeschooling my youngest daughter and various volunteer activities in my town.  I had not planned on sharing my story when I began this blog, but after multiple requests for my story, I felt I should share it here and make it accessible to everyone.  To me, my story is boring and uninspiring, so I keep sliding it to the bottom of my stack, but here goes….for all those who have asked.

My Story:

Part 1 –The early years with undiagnosed EDS; when being bendy was fun.

I had a fairly normal childhood, with accidents and illnesses.  I was sick more than any kid I knew, and it seemed to always be due to allergies or sore throats.  I was constantly on an antibiotic or home sick.  I was accused of being anorexic, anemic, bulimic and anything else that had been thought of in the 70’s and 80’s, but every test was negative.

I can actually remember my age or where we lived based on the illnesses and injuries I experienced.   Who, besides an EDS patient, does that?

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