Posts tagged: Dislocations

One Woman’s Shares How Faith, Family & Fun Carry Her Through Her Days of Pain

One Woman’s Shares How Faith, Family & Fun Carry  Her Through Her Days of Pain

One Woman Shares How Her Faith, Family and Fun Carries HerThrough Her Days of Pain.

This is a story.  It‘s about me.  A woman of faith with E.D.S. #3

This means that I am “bendy” and very seldom break.  But I do often wonder “Just how much more can I take?”

I go to bed sore and wake up in pain.  It doesn’t seem to matter in what position I have lain.

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One Family’s Journey To An E.D.S. Diagnosis

One Family's Journey to an E.D.S. Diagnosis M's Zebra

One Family’s Journey to An E.D.S. Diagnosis

EDS is known to cause frequent dislocations of the joints. I remember hearing that my first dislocation had happened when I was three, but the stories about how it happened vary.  I found this slip of paper from a hospital showing that something had happened to my elbow when I was only 1.5 years old that warranted an X-ray.  So, it seems I may have dislocated that elbow twice.  I became a fairly careful child and haven’t had any documented dislocations since then.

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Laura’s Journey With E.D.S.

My name is Laura, and I’m 32 years old.  I’ve had chronic pain since I was 14. I’m an artist, and I love to make stuff… but sometimes I struggle because of my hands.  This is my story.

Laura's Journey With EDS Photo

I have I a connective tissue disorder called Ehlers Danlos Syndrome.

It affects how my body produces collagen, which is basically the glue that holds our body together.

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The Early Years- “When EDS Was Still Fun”

Picture for blogHi!  I am a married Zebra mom with two (diagnosed) Zebra teen girls and one teenage son.

Why do I refer to us as zebras?   You can find those details here.

The accessories at our house tend to come from a brace catalog, more than Glamour magazine, but the good news is… we match!  I am currently involved with two blogs, spreading EDS (Ehlers Danlos Syndrome) Awareness, making crafts, homeschooling my youngest daughter and various volunteer activities in my town.  I had not planned on sharing my story when I began this blog, but after multiple requests for my story, I felt I should share it here and make it accessible to everyone.  To me, my story is boring and uninspiring, so I keep sliding it to the bottom of my stack, but here goes….for all those who have asked.

My Story:

Part 1 –The early years with undiagnosed EDS; when being bendy was fun.

I had a fairly normal childhood, with accidents and illnesses.  I was sick more than any kid I knew, and it seemed to always be due to allergies or sore throats.  I was constantly on an antibiotic or home sick.  I was accused of being anorexic, anemic, bulimic and anything else that had been thought of in the 70’s and 80’s, but every test was negative.

I can actually remember my age or where we lived based on the illnesses and injuries I experienced.   Who, besides an EDS patient, does that?

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