Christal’s Journey to Diagnosis
I was born in a small town Florida in May 1972.
I was born with a cleft palette and later on they found hearing loss.
I was five years old when they started repairing my cleft palette and began putting tubes in my ears. Through the next couple of years they put several sets of tubes in my ears. In my early childhood my Doctor’s name was Dr. Doorman from Lakeland, Fl.
In kindergarten I started speech classes and they ran hearing tests. I attended almost 4 years of speech class.
In middle school I of missed lots of school due to Dr. appointments. I fell behind really bad. My hearing loss was making it hard to keep up. I began not participating in PE because when I did I was non functional due to pain. Missing school and friends became a routine for me.
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For further details on her illnesses, simply click on the highlighted words.
THE STORY OF ME
My name is Rachel.
This is the story of me.
My body is full of surprises, as you will soon see.
I have strange joints, not just elbows and knees
but ALL of my joints are really bendy.
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Tags: EDS, Ehlers Danlos Syndrome, MCAD, Overcoming, Poem, POTS, Rash, Reynauds, Teen, Teenager
Inspiration, My Family's Personal Stories, Real Life Stories | TinaMiller | 
February 21, 2015 9:21 pm | 
Comments (14)
One Teenager’s Response to Living With A Chronic Illness
My teenage daughter was asked to write a narration with a moral for her comp class this year. She is a senior. She chose to write not only about her fight to help others understand what EDS is and how it affects her everyday life but how she is not going to let her illness ruin it.
(She is definitely her momma’s girl.)
This is her paper in it’s entirety with links added to empower others with useful knowledge.
Do Not Be Ignorant
Once upon a time, in a not so far away land, lived a dark haired maiden. She was your average, all around, American girl, but behind all of that was a different person that no one ever saw besides her family. Until one day, she could not hide anymore. She had to show herself to the world, not knowing how people would react to seeing her in the not so beautiful reality. This is my story asking people not to judge me until they come to know me and my life. Read more »
Tags: Ehlers Danlos Syndrome, Homecomming and EDS, Hypermobility, Invisible Illness, My struggle with EDS, Teen, Teenager, Teens with EDS
Helping Your Unusual Child, Inspiration, My Family's Personal Stories, Real Life Stories | TinaMiller | October 13, 2014 10:17 pm | Comments (10)
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