The Bird Family’s Journey With E.D.S.

The Bird Family’s Journey With E.D.S.

My name is Carrie, I am a 32 year old single mom to 2 beautiful special needs children, who have a few genetic medical conditions I passed down to them.

I started having major pain in my body around age 10, then began having copious amounts of charley horses in my teen years.

I tore ligaments, and broken many bones then started passing out when I was 14 or 15 years old.

I was told nothing was wrong with me and “to keep pushing on”, so I did.  I still played sports, even through all the excruciating pain, passing out and joint dislocations.

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40 Years to Zebra

In honor of EDS awareness month, I wanted to share my EDS story.

40 Years to Zebra

It actually starts years, well decades, before I even knew I had EDS or what that word even was.

I have been sick since birth.

I was able to find records that show my hips popping out at 6 months and all sorts of notes about checking left arm, right leg, etc.

Around that time I also started having other issues but no one connected that to my hips.

When I was 5, I had my first surgery for a hernia that I either gave myself or it just came up?

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Mel’s Fight With E.D.S.- A Real Life Story

Mel’s FIGHT with E.D.S.

Hi, I’m Mel!

I’m 21 years old…

I’ve always had problems with joints etc..

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Rantings of an EDS Mom

Rantings of An EDS Mom

I just finished our company call for my direct sales company and they announced our trip incentives.

It all sounds wonderful and I would love to go.

Who doesn’t want 4 days and 4 nights paid vacation?

No house to clean, no doctors to call, no doors to answer, no meals to cook, no dishes to do.

And then I remember I have E.D.S. (Ehlers Danlos Syndrome)

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33+ Ways To Spread E.D.S. Awareness

33+Ways to Spread E.D.S. Awareness

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“Ask Me About E.D.S.” Awareness Shirt

It’s here.

“Ask Me About E.D.S.” Awareness Shirt

It can be ordered at anytime through the following link at Etsy.

https://www.etsy.com/listing/288181775/eds-awareness-t-shirt?ref=shop_home_active_1

A great WAHM has been gracious enough to offer them in children’s, toddlers, adult and plus sizes.  They will be available in a variety of colors and she will create them as we order them.

NO minimum needed.  She processes the orders AS she receives them.

(I chose white for the initial design, as I am partial to it).

Here is a peek at the back view.

Of course I had to get the zebra ribbon and Change For EDS motto on there.

And a fun shot of me!

We would love for you to send us a photo of you wearing your shirt to put into either a slideshow, video or photo collage to celebrate how much awareness our dazzle (group of zebras) has spread at the end of May.

Photos can be sent to

TheZippyZebra@outlook.com

Don’t forget we are asking you to share your EDS stories in the month of May too.

We want to flood social media with as many stories as we can, but at least one a day!

For details click here.

In the meantime…don’t forget to ROCK EDS Awareness month.

This is our dazzle.

Sharing Sunday #15

OMG!  I am so excited!!!  Do you know what today is?  It is the first day of May!  The first day of EDS Awareness month.  The kick off to so many things!  Best of all an excuse to shout about our syndrome from the roof tops.

Who wants to join us on spreading awareness through social media, schools, doctors, stories, TVs, news, signs and apparel?

Today we are sharing a T-shirt created JUST to spread awareness.   The front features the words  “Ask me about E.D.S.” the back is a surprise you need to click THIS LINK to see it.  Be sure to head over and check it out.   Order early to have it during the month of May!

We will also be sharing our “Simple Ways to Spread Awareness” List, memes, stories, videos, news articles and more so be sure to sign up for our email list and not miss a single post OR follow on Pinterest, Twitter and Facebook.

Our biggest goal this month is to have you, our readers, share your stories.  Long or short.  So that each day we are sharing a new story on the blog and internet.  So, if you have a story, video, article, a meme, artwork, awareness campaign or anything else to share PLEASE send it to thezippyzebra@outlook.com as soon as possible so we can share it with the world.  And yes, we have readers world wide.  We may be small but we span a wide space.   All stories submitted by May 10th will be entered in the drawing to win a FREE  “Ask Me About E.D.S.” shirt.   Winner will be announced May 11th.

I also want to share that we will be sending in $6.30 as our contribution to “Change For EDS” research.  Read more about what that is here.

What were you able to contribute this month?  Pleas share in the comments below to encourage everyone.

“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.

This linkup is not only for the chronically ill but for everyone that has a personal story, that offers help (allergen-free recipes and ideas), adaptation ideas, testimonials or anything that would be helpful or encouraging to others, (even sharing a day in your life).

The idea of the “Get The Word Out” link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, recipes, income earning ideas, etc… and to support each other during this sometimes, lonely journey.

Bloggers struggling with pain and challenges can visit other sites, while non-bloggers can find others like them and follow along in addition to finding recipes, tips and adaptations that may help.

I LOVE fun, crafty, anything goes linkups but the “Sharing Sunday” Link-up is not one of those.

We will have a few guidelines to keep the links useful and uplifting to our readers.

Bloggers before linking up please follow our guidelines found here.

[inlinkz_linkup id=619609 mode=1]

Sharing Sunday #13

“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.

This linkup is not only for the chronically ill but for everyone that has a personal story, that offers help (allergen-free recipes and ideas), adaptation ideas, testimonials or anything that would be helpful or encouraging to others, (even sharing a day in your life).

The idea of the “Get The Word Out” link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, recipes, income earning ideas, etc… and to support each other during this sometimes, lonely journey.

Bloggers struggling with pain and challenges can visit other sites, while non-bloggers can find others like them and follow along in addition to finding recipes, tips and adaptations that may help.

I LOVE fun crafty, anything goes linkups but the “Sharing Sunday” Link-up is not one of those.

We will have a few guidelines to keep the links useful and uplifting to our readers.

Bloggers before linking up please follow our guidelines found here.

[inlinkz_linkup id=619607 mode=1]

Sharing Sunday #12

“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.

This linkup is not only for the chronically ill but for everyone that has a personal story, that offers help (allergen-free recipes and ideas), adaptation ideas, testimonials or anything that would be helpful or encouraging to others, (even sharing a day in your life).

The idea of the “Get The Word Out” link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, recipes, income earning ideas, etc… and to support each other during this sometimes, lonely journey.

Bloggers struggling with pain and challenges can visit other sites, while non-bloggers can find others like them and follow along in addition to finding recipes, tips and adaptations that may help.

I LOVE fun crafty, anything goes linkups but the “Sharing Sunday” Link-up is not one of those.

We will have a few guidelines to keep the links useful and uplifting to our readers.

Bloggers before linking up please follow our guidelines found here.

[inlinkz_linkup id=619606 mode=1]

Nate, Our Blessing

April is Autism Month

I would like to introduce you my son:

Nate, Our Blessing

Nate has Autism.

He was 10yrs old when we found out.

Yes, it changed our lives but it also made me look at the way I was parenting him and why sometimes he could not do some of the things I asked him to do.

There are still some things that I continue to work on but with our help he is now helping out around the house.  He is taking trash out and helping with laundry.  I know it is nothing big, but to us it is big.  I ask him to please take out the trash and he does it.  He might grumble but he does it.

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