I am sure you find yourself wondering what exactly a cell phone, a blizzard, a freezer and brain fog have in common.
ME!
The “evidence” frozen in place.
(Sorry about the rough photo.)
As many of you know I have been quite absent from the blog the past month or so. I apologize for that and expect to begin regularly (on schedule) beginning January 2nd.
What you might not know is that I have been struggling with my own EDS, and even more time consuming (and draining) the health of my youngest daughter. Thankfully, we are beginning to find answers and she has become more stable and stronger in the past few weeks. Read more »
Hello everyone! I am back.
I have to apologize for being absent for the past two weeks, with everything going on in my life I did not realize it had been two weeks since I posted or checked in through anything but facebook.
Just a little update on my world.
I know I have a “anticipated” schedule I had hope to adhere too but the recent setback of my own health and my daughters put a damper on that plan.
I will be back in force in January.
If you missed the last link-up feel free to check it out here. Read more »
It’s All About Those Joints
(An EDS parody of “It’s All About That Bass” by Meghan Trainor)
My daughter and I wrote those lyrics in the last half hour this morning.
(We needed a smile) Read more »
40+ Simple Handmade Gifts Your Kids Can Make
This post is full of links to other great blogs with instructions and suggestions for gifts your children can create for or under $5.
It includes gifts using newborn footprints, toddlers hand prints, preschool cut and glue projects, as well as projects for older kids with adult supervision.
I hope you find them both useful in your gift giving and fun to do with your kids.
Many can be created with things you probably have on hand already. Read more »
One Teenager’s Response to Living With A Chronic Illness
My teenage daughter was asked to write a narration with a moral for her comp class this year. She is a senior. She chose to write not only about her fight to help others understand what EDS is and how it affects her everyday life but how she is not going to let her illness ruin it.
(She is definitely her momma’s girl.)
This is her paper in it’s entirety with links added to empower others with useful knowledge.
Do Not Be Ignorant
Once upon a time, in a not so far away land, lived a dark haired maiden. She was your average, all around, American girl, but behind all of that was a different person that no one ever saw besides her family. Until one day, she could not hide anymore. She had to show herself to the world, not knowing how people would react to seeing her in the not so beautiful reality. This is my story asking people not to judge me until they come to know me and my life. Read more »
Tags: Ehlers Danlos Syndrome, Homecomming and EDS, Hypermobility, Invisible Illness, My struggle with EDS, Teen, Teenager, Teens with EDS
Helping Your Unusual Child, Inspiration, My Family's Personal Stories, Real Life Stories | TinaMiller | 
October 13, 2014 10:17 pm | 
Comments (10)
As much as I would love to pretend that I have some amazing ideas for “What To Do When You Are Stuck On Your Bum With No Hands”.
I don’t.
Some of the items below are repeats from the post 30+ Things to Do when Stuck On Your Bum (a.k.a. Bedrest) with hands free adaptations.
I will, however, list the items that were suggested in hopse that others will share their ideas in the comment section or through email.
I know I personally cannot tolerate being idle and I swear even when I’m asleep my mind runs at 5,000 miles per hour, so no hands becomes VERY depressing for me and yes, I have been there.
10+ Things to Do When Stuck on Your Bum With No Hands
Read more »
Subscribe
