Winner

We are pleased to announce we received 8 personal stories from our zebra friends and family by midnight last night.

We are still accepting to complete the month of May and share throughout the year but those early bird entries received the opportunity to win one our “Ask ME About E.D.S.”  awareness t-shirts.

And that winner is…….

Hannah Wingert

Hannah’s story can be found on Thursday May 12th as well as on her blog at Sunshine and Spoons.

If you would like to send your story to The Zippy Zebra simply follow the directions located on our submissions page.

One Woman’s Rise Above E.D.S.

One Woman’s Rise Above E.D.S.

Ehlers Danlos Syndrome.  Three ugly little words that changed my life, took everything from me, erased years of work and struggle, took away my identity.  Three words that gave me a new life, new purpose, a new appreciation for every day.

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One Family’s Journey To An E.D.S. Diagnosis

One Family’s Journey to An E.D.S. Diagnosis

EDS is known to cause frequent dislocations of the joints. I remember hearing that my first dislocation had happened when I was three, but the stories about how it happened vary.  I found this slip of paper from a hospital showing that something had happened to my elbow when I was only 1.5 years old that warranted an X-ray.  So, it seems I may have dislocated that elbow twice.  I became a fairly careful child and haven’t had any documented dislocations since then.

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Sharing Sunday #16

This has been a super busy week at The Zippy with the launch of E.D.S. Awareness month.

The T-shirts we created to spread awareness are ready, are affordable and can be shipped straight to you.  NO waiting for a minimum.

You can find the link here.

We have also been sharing one E.D.S. Story a Day in our “Real Life Stories” Series.

We would love to have you share YOUR story as well.   Details on how and what we are looking for are found on our submissions page. 

Anyone submitting their story by midnight CST May 10th will be entered in the drawing for an “Ask Me About E.D.S.” T-shirt.   All stories will be printed but the T-shirt winner will be announced May 11th.

Our goal is to continue sharing at least one E.D.S. story daily as we do our part to spread awareness and how it truly affects each and every on of us.

“Sharing Sunday” Link-up is available EVERY Sunday for blogs featuring articles that will help those with a chronic illness.

This linkup is not only for the chronically ill but for everyone that has a personal story, that offers help (allergen-free recipes and ideas), adaptation ideas, testimonials or anything that would be helpful or encouraging to others, (even sharing a day in your life).

The idea of the “Get The Word Out” link-up is to spread the word about our illnesses, adaptations, short-cuts, tools, articles, stories, recipes, income earning ideas, etc… and to support each other during this sometimes, lonely journey.

Bloggers struggling with pain and challenges can visit other sites, while non-bloggers can find others like them and follow along in addition to finding recipes, tips and adaptations that may help.

I LOVE fun, crafty, anything goes linkups but the “Sharing Sunday” Link-up is not one of those.

We will have a few guidelines to keep the links useful and uplifting to our readers.

Bloggers before linking up please follow our guidelines found here.

[inlinkz_linkup id=619618 mode=1]

Laura’s Journey With E.D.S.

My name is Laura, and I’m 32 years old.  I’ve had chronic pain since I was 14. I’m an artist, and I love to make stuff… but sometimes I struggle because of my hands.  This is my story.

I have I a connective tissue disorder called Ehlers Danlos Syndrome.

It affects how my body produces collagen, which is basically the glue that holds our body together.

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The Bird Family’s Journey With E.D.S.

The Bird Family’s Journey With E.D.S.

My name is Carrie, I am a 32 year old single mom to 2 beautiful special needs children, who have a few genetic medical conditions I passed down to them.

I started having major pain in my body around age 10, then began having copious amounts of charley horses in my teen years.

I tore ligaments, and broken many bones then started passing out when I was 14 or 15 years old.

I was told nothing was wrong with me and “to keep pushing on”, so I did.  I still played sports, even through all the excruciating pain, passing out and joint dislocations.

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40 Years to Zebra

In honor of EDS awareness month, I wanted to share my EDS story.

40 Years to Zebra

It actually starts years, well decades, before I even knew I had EDS or what that word even was.

I have been sick since birth.

I was able to find records that show my hips popping out at 6 months and all sorts of notes about checking left arm, right leg, etc.

Around that time I also started having other issues but no one connected that to my hips.

When I was 5, I had my first surgery for a hernia that I either gave myself or it just came up?

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Mel’s Fight With E.D.S.- A Real Life Story

Mel’s FIGHT with E.D.S.

Hi, I’m Mel!

I’m 21 years old…

I’ve always had problems with joints etc..

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Rantings of an EDS Mom

Rantings of An EDS Mom

I just finished our company call for my direct sales company and they announced our trip incentives.

It all sounds wonderful and I would love to go.

Who doesn’t want 4 days and 4 nights paid vacation?

No house to clean, no doctors to call, no doors to answer, no meals to cook, no dishes to do.

And then I remember I have E.D.S. (Ehlers Danlos Syndrome)

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33+ Ways To Spread E.D.S. Awareness

33+Ways to Spread E.D.S. Awareness

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