I happy to say that it has been a fairly good week here at The Zippy Zebra. I shared the first part of my personal story including a childhood with undiagnosed EDS yesterday and will be sharing the adult years and diagnosis later.
My work with a great group of individuals implementing a EDS Awareness campaign has been fruitful and exciting. I simply CANNOT wait to get it started.
Other news
We havea Pinterest page at The Zippy Zebra. Want to follow us? https://www.pinterest.com/thezippyzebra/ It is still in the baby stages but we would love to have you join us there.
We are still accepting stories for the “Real Life series”. Find the details on how to participate here.
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Hi! I am a married Zebra mom with two (diagnosed) Zebra teen girls and one teenage son.
Why do I refer to us as zebras? You can find those details here.
The accessories at our house tend to come from a brace catalog, more than Glamour magazine, but the good news is… we match! I am currently involved with two blogs, spreading EDS (Ehlers Danlos Syndrome) Awareness, making crafts, homeschooling my youngest daughter and various volunteer activities in my town. I had not planned on sharing my story when I began this blog, but after multiple requests for my story, I felt I should share it here and make it accessible to everyone. To me, my story is boring and uninspiring, so I keep sliding it to the bottom of my stack, but here goes….for all those who have asked.
My Story:
Part 1 –The early years with undiagnosed EDS; when being bendy was fun.
I had a fairly normal childhood, with accidents and illnesses. I was sick more than any kid I knew, and it seemed to always be due to allergies or sore throats. I was constantly on an antibiotic or home sick. I was accused of being anorexic, anemic, bulimic and anything else that had been thought of in the 70’s and 80’s, but every test was negative.
I can actually remember my age or where we lived based on the illnesses and injuries I experienced. Who, besides an EDS patient, does that?
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Tags: Chronic Illness, Chronic Pain, Clumsiness, Dislocations, EDS, EDS Personal Story, Ehlers Danlos Syndrome, Hypermobility, My EDS Story, Positive Things About EDS, Subluxations
My Family's Personal Stories, Real Life Stories | TinaMiller | 
March 24, 2015 5:11 pm | 
Comments (1)
I realize that several of you may be in tight financial situations and can afford neither expensive or difficult renovations, so that’s why we decided to share a variety of inexpensive and simple ideas on how to make your laundry room work for you. Please keep in mind that we try to suggest things that will work for a variety of people and there is no way to actually meet the needs of each individual every single time but we still appreciate your feedback.
HOW CAN I ADAPT THE LAUNDRY ROOM TO SUIT MY NEEDS WITHOUT GOING BROKE?
Lets start with the simple things.
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Thank you for stopping by and please be sure to tell everyone you know (bloggers and readers) about the opportunity to spread the word.
I am so excited
to share that the little plan I had in the back of my head for an EDS Awareness Campaign for the month of May is in the works and it is already bigger than my tiny expectations thanks to a great group of poeple in our community. I will be sharing a link to the campaign website and details in the next few weeks so be sure to check back or sign up for updates. You don’t want to miss out!!!
Other news
Great news! We have started a Pinterest page at The Zippy Zebra. Want to follow us? https://www.pinterest.com/thezippyzebra/ It is still in the baby stages but we would love to have you join us there.
We are still accepting stories for the “real life series”. Find the details here.
Read more »
After the surveys one of the chief complaints mentioned was how much of a struggle it is to gather and sort the dirty laundry from all over the house, especially if there were other members in the household who refuse to put their laundry in the designated area.
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I don’t know about you but laundry is one of the most difficult (and neverending) tasks I face everyday.
Just when I believe it’s caught up another load (or 4) “magically” appears.
After putting out a few feelers in some of our support group, using my own struggles and getting our readers suggestions as a base I believe I have developed a comprehensive list of adaptations, tools and shortcuts to help make each load a little easier.
Mondays & Fridays in the month of March and April will be devoted to sharing some of the tips and tricks we have discovered.
The most common problems listed during the survey were:
1. Gathering/Sorting (especially when others live there)
2. Transferring from washer to dryer
3. Folding/Hanging
My plan is to address these as thoroughly as possible here on the blog over the next few months if you have any specifics you struggle with or suggestions to make any household tasks easier please leave a comment below.
All comments are moderated.
If you would like your comment to remain “private”, please type. Private at the beginning of the comments.
#laundryspoonsavers
Christal’s Journey to Diagnosis
I was born in a small town Florida in May 1972.
I was born with a cleft palette and later on they found hearing loss.
I was five years old when they started repairing my cleft palette and began putting tubes in my ears. Through the next couple of years they put several sets of tubes in my ears. In my early childhood my Doctor’s name was Dr. Doorman from Lakeland, Fl.
In kindergarten I started speech classes and they ran hearing tests. I attended almost 4 years of speech class.
In middle school I of missed lots of school due to Dr. appointments. I fell behind really bad. My hearing loss was making it hard to keep up. I began not participating in PE because when I did I was non functional due to pain. Missing school and friends became a routine for me.
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Thank you for stopping by and please be sure to tell everyone you know (bloggers and readers) about the opportunity to spread the word.
Great news! We have started a Pinterest page at The Zippy Zebra. Want to follow us? https://www.pinterest.com/thezippyzebra/ It is still in the baby stages but we would love to have you join us there.
It has been a full week in this zebra’s life with the debut of a local play, out of town guests including a beautiful little baby and now a round of some very nasty flu. But the weather is beautiful so things are looking up.
Book Giveaway: Click here to check out our book giveaway (The first in a paranormal series) and receive a link to the 2nd in the series (FREE).
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In honor of the launch of Rebecca Howard’s 3 Book DARK HOLLOW ROAD (release date March 30), we are excited to offer the chance to win a FREE Kindle copy of WINDWOOD FARM .
The first in a paranormal series featuring a protagonist who struggles with a chronic illness (revealed in book 3).
I have to admit I have not had the opportunity to complete my copy but I have enjoyed the little bit I have read so far.
For details on how to enter please check the rules below.
Rebecca is also offering a FREE copy of the 2nd book Griffin Tavern for anyone who signs up for her email subscriber list. (I just did and it took less than 2 minutes to complete).
This is available to anyone not just those purchasing a book or entering the contest.
To discover more click here.
To learn more about the series and check out other great books by Rebecca check out her Amazon site here.
NOW FOR THE GIVEAWAY!
Just click on the box below (provide your email or link to your FB page to be contacted ONLY if you win the giveaway, this does not sign you up for repeat emails or FB notifications, it is ONLY for notification for winning)
Then leave a comment on this post below and follow the other instructions to be entered for a chance to win. I know some have been confused by the “rafflecopter box” when it says to “leave a comment”. Simply click the blue box at the bottom of this post and leave a comment there then return to the rafflecopter box and click “I commented” and you are entered!!!
a Rafflecopter giveaway
For contest rules click here. (Due to the fact no shipping is involved non-U.S. residents are welcome to participate).
If you would like to follow The Zippy Zebra please like our FB page, follow us on Twitter, or sign up for email notification. We would love to have you join us in our journey to brighten everyone’s day.
#WindwoodFarm # RebeccaHoward #Giveaway
Note: I am in no way receiving compensation for this promotion. I have not received free material or financial restitution. These are not affiliate links. As previously stated I have yet to finish the book. I am simply helping a fellow zebra promote her series.
Karen’s Inspiring Story
Life With Marfan’s
Part 2
I was so very appreciative that I finally got to experience it. Tree branches were no longer just green colored arms sticking out of a tree; they were suddenly branches that had beautiful vibrant individual green leaves on them. Flowering plants weren’t just a blob of color anymore; they were a beautiful living creation from God, with their own blooms and leaves, and little bugs that crawl on their petals.
Want know what Karen is referring to? Read the beginning of Karen’s story here.
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